Genetic risk communication in childhood, Genetic Testing in Children, Fragile X Syndrome, and Genetic Counseling
One of the major objectives of genetic counseling is to facilitate adaptive coping through interventions designed to provide families with the knowledge, skills, and resilient self-beliefs required to cope, adjust, and affect control over their lives. How to accomplish these objectives when the focus is on children is not as clear. Additionally, just as children grow and change so does the meaning and utilization of the genetic information for both the child and the family. Although there has been some exploration of preferences of when to inform about genetic risk and to offer carrier testing there is limited information on how information is communicated to children within a family.
